Wellness
to me it's
personal
there is never
just one way
Wellness to me is a lot more than simply looking at health. It is a whole lifestyle based around balance and keeping our body, mind and soul ‘well’. On my health and wellness journey facing so many health adversities and essentially living with invisible disability, I have come to associate health with more the medical and scientific approaches. And wellness as more of the natural holistic approaches. Wellness is about positive life balance and health is about our body.
It is important we get to choose our wellness journey.
If I decide I don’t like what a medical practitioner has said and it doesn’t resonate with me, I can choose whether or not to take that advice and get that script filled. Or I can get a 2nd opinion, research more myself, go to a blood analysis naturopath, or other alternative types of healing.
There is never just one way.
When it comes to our own life we have the right to live it the way we choose. Put into our bodies what we choose. Make decisions that are empowering for us. We are not just a number and I for one refuse to be treated like one. We are all valuable human beings, we are all valid, we have a voice and we deserve to use it. Especially when sticking up for our own wellness.
FIBROMYALGIA +
In my 30’s after living with a lot of mysterious ongoing pain, I was diagnosed with fibromyalgia dating back to the age of 15. I was so excited to have a diagnoses as I thought ‘great I can now find a cure’. Nope. I was told there’s nothing much I can do, try to exercise (when I was in so much pain I could barely get out of bed) that it’s a life sentence, I can try dietary changes, but essentially it is my body telling me I’m in more pain than I am actually in. It is fake pain. That is what I was told. What was I meant to do with that exactly?
When I researched it was autoimmune. Then it wasn’t. Then it was again. Honestly there was hardly any information on the subject that was empowering and helpful. I didn’t even know how to explain it to my friends and family. It was about 2013 and not many doctors I went to knew anything they just looked it up and did what the computer told them in treating me. Some people told me of doctors who specialised but it took months to get in and they were so far away and I could hardly even drive. It was horrible.
Unable to find much information about fibromyalgia in Australia, I joined FB groups and read about people who were as miserable as I was. It was helpful for about 10 days then I just couldn’t handle the negative energy, the constant talking about pretty hardcore pain medications and all their side effects and the often very valid whingeing. It was depressing. Like becoming a part of an external pain body.
Over time I have found different doctors who know something about fibromyalgia but not a lot of treatments worked. I tried the crazy pain meds reluctantly when I was at my worse and felt like I was on heroin. Not for me. Besides I thought if it was wrong signals of pain in my body how were these meant to help?
After years of getting worse not better I pulled away from it all and rested my body and mind. I researched, spoke to people, tried CBD oil which helped for a while. Used a mild pain killer and got to know my body. I started to recognise the different types of pain and was able to self treat them. I realised if I got weekly massages it really helped but more than that could be too much. I also realised that if I started to get stressed my body would react hyper vigilantly. I have a sensitive system and rather than fight my body and her reactions, I started to honour her and learn. I stopped trying the big stuff and focussed on the little stuff. And slowly over time I have started to get better, be able to manage the flareups and treat my body with love and care. I got out of the medical grind focusing on symptoms as it wasn’t helping me at all. I took my power back.
migraine
There is no joy in chronic migraine. The pain is beyond what humans should have to bare on a regular basis. Everything goes black. Except for the smallest piece of light or noise that is like lightning piercing the black with more overwhelming searing pain. This pain is too great for me to ‘go into’ to try and heal in the moment. It takes everything from me in the immediate and renders me completely useless.
The nausea is overwhelming. The head literally feels like it is about to explode. The body goes limp and lifeless. You hope to sleep but rarely can, prolonging the torture.
People who don’t have migraines, mostly assume it’s just a bad headache. It’s not.
Those of us who have experienced chronic migraine where it happens over and over and over again, start to feel like we are losing our minds. It is not a life we want to keep living. It is that bad.
I started getting migraine 6 months after a car accident.
It shocked me.
It affected my life in every way.
I had to suffer in silence with no one to take care of me.
I tried a unique red light treatment over 8 months that was a lot of effort but didn’t help very much, then I moved to Bali.
Slowly I started to get better as I did the work and learnt about my body. I made drastic changes in my life like moving to another country allowing me to afford help around the house and I started my own business. Then I had to be honest with myself and others and talk about my limitations and ask for help and just do my best.
invisible illness
Living with invisible illness is very isolating. For me it turned me from a vivacious, energetic, vibrant, highly social and active person. To a homebody, with a rather stagnant lifestyle, no energy and introverted. I have found a new life reality that was initially very hard to adjust to. Not unlike the experience many people felt going into lockdown during a pandemic. From shock and disbelief to slowly understanding this is a new reality and not knowing how long it will last, to accepting the change and learning to find the good in the present moment.
I work very hard with my mental health not to see myself as a victim with invisible illness. Sometimes it is impossible and you sink into the pain and loss, while other times I can even see the benefits of having become more aware of my body and celebrate the freedoms I have created in my life to cater to my needs.
Invisible illness made me get out of the grind of everyday life and has shown me I can still be successful designing my life in a different way. It is not in my nature to concede defeat but I must say that has happened many times with many a breakdown moment.
chronic pain
The lowest points in my life have been when I have felt defeated by chronic pain. Sometimes these have been moments. Other times they have been weeks even months of depression with only fleeting moments of happiness. Feeling depressed due to chronic pain is a weird body dynamic for me. I am not a depressed person. But when the pain is relentless then surrender leads to feelings of hopelessness and the depression kicks in until the pain subsides.
Really bad chronic pain means that you have really bad pain for a long long time. I actually don’t remember a life without pain. I do remember a more active life with a lot less pain. Mixed with those periods that were so overwhelming I would be sobbing on the floor in defeat, not wanting to live any more. The memories of pain are also real in living with chronic pain.
Usually these lowest periods would then bring about change which is weird in itself. Maybe surrender and pure anguish is the key. Or maybe it is just my journey and my pattern. I do know that having a voice and not supressing my pain does help me a lot. Whether I write poetry, a book, or crazy scribblings of anguish that I rip up and throw away..
When you have chronic pain you can’t let your frustrations out at the gym or a run, or kick boxing or those physical ways I used to let it out. Now it is trapped inside me in a harsh relentless prison. Until I write. And even then it is a very passive release when I would rather just rip it out of me.
eating disorders
I had an eating disorder at age 14 – 15. I am a survivor of bulimia. At the time I felt out of control. I had no outlet. I had no one to speak to. I was putting myself under immense pressure to do well at school so I could escape a reality my parents had designed for their lives, but it wasn’t for me. The school I went to was small and not a good academic school and I felt all odds were against me. And I was right about this but I was never listened to. I had no tools in my emotional toolbox about how to handle this.
So I binged on cereal most nights when everyone had gone to bed. I tiptoed quietly around the kitchen finding it unbelievable no one could hear me in the quite small house with squeaky floors. I then tiptoed to the toilet off the laundry and very close to my parents bedroom but a small confined space that somehow felt comforting.
FIBROMYALGIA +
awareness
taking responsibility
seek help
do the work
authenticity
keep healing
I believe as humans on earth at this time, for many of us our journey is about healing. More than ever we have amazing knowledge through science, amazing medical tools and techniques, amazing doctors and health practitioners … yet we are as a race seemingly sicker than ever. Life is prolonged more than ever before but at what cost? Quality of life and living with illnesses seem to be an epidemic whether these are physical, emotional or mental and everything else in between. We seem to be living in a fake freedom to do with our wellness.
We are given less and less information or time and attention by doctors and simply told to treat symptoms. This is clearly not working and I for one feel that we have so much untapped intelligence within us in our intuition, ancient healing techniques that are ignored and more information than ever that has been lost or futuristic technologies repressed. It is time for us to take our power back and be responsible for our own healing and not just blindly follow doctors' or therapists' orders anymore. If something doesn’t feel right then go in another direction.
Healing is personal for everybody but generally always includes the following steps . . .